Various updates

Lots of things going on in the Kruse household!

• Sam is adjusting to his cannula well.  Mom and Dad are adjusting to how to put on the tender grips so that he can't get it out of his nose easily.  It's definitely been a huge adjustment for us.  It's hard to look at your little baby covered in wires every night.  
• Sam decided that since he has a cannula in his nose, he wants no part of his pacifier.  This has been probably the hardest part.  
• Sam has his helmet consult on Monday, but he is switching to every other week for physical therapy after next week because he's doing so well!
• Jack had his adenoids removed and a new tube put in one ear Friday.  He did very well with the surgery.  The pain medication made him hyper and he spent the rest of the day running in circles (and stumbling).
• Sam appears to be teething on top of everything.
• Sam is doing so well holding his head up now!  He can hold it up for long periods of time without any help!

Night one of oxygen...

...is going very well!  He's doing so good with it!

I put the cannula on at around 3 PM and he got used to it pretty quickly.  It took maybe five extra minutes to get him to sleep.  

Here's a cute picture of Sam while he was adjusting to wearing the cannula...

Brothers

Jack "reading" one of his all time favorite books to Sammy.  My house looks very messy in this picture, but the playroom gets ridiculous during the day.  Jack loves to spread every single toy around.  The pillow next to Sammy's head is my breastfeeding pillow that Jack likes to wear.  

Update about sleep study results!

After a day of calling various departments at Primary, I finally spoke to the ENT that requested the sleep study.

Sam has complex apnea, meaning it's a mixture of central and obstructive apnea.  Sam mainly has central apnea, at least according to the ENT.  We are switching ENTs to Jack's ENT next week and I'll get his reading of the sleep study as well.

In the meantime, I am going to order the oxygen equipment.  I dread the first few nights.  DREAD.

Sleep Study results are in

And...

Sam has sleep apnea.  Matt talked to the doctor, which is never good because he doesn't know what questions to ask.  Plus Matt is an extreme introvert, so he just tries to get off the phone as soon as possible.  I am going to call over there in the morning to get some more answers.

I need to know...

1. Do they think he has obstructive or central apnea?  Or both?
2. How severe is the apnea?
3. When they told Matt that Sam needs oxygen when he's sleeping, did they mean a CPAP or a canula?  At first I thought it was a CPAP, but the way Matt said oxygen and had no idea what CPAP meant as well as they way they said just oxygen and told us to set up delivery with our pediatrician...makes me think canula.  From what I understand, to get a CPAP, you need to schedule a second sleep study.  
4. Are there other measures we can take to decrease his apnea?  Should we be looking at removing his adenoids and tonsils?

And for fun...here's a video of Sammy with his favorite toy.

Helmet consult

Sam's plagio is not improving even though he sleeps on the side of his head (or tummy) 95% of the time now.  He has a consult with an oral/facial/plastics doctor in two weeks to assess whether he needs a helmet/band.  His torticollis has improved almost completely though!

Look how happy those babies in their helmets look!

Big boy bed!!

Jack is attempting to sleep in his big boy bed tonight!

Here's an adorable picture of when I tucked him in for his nap (failure).